The information in this toolkit will help families and caregivers ask questions to learn if it is time to start a conversation about hospice or palliative care.
The information has also been modified so that medical professionals and health care providers can ask similar questions of families to begin a conversation about if and when it is time to talk about hospice or palliative care for their child.
Resource for how to talk about "Pediatric Palliative Care" with your care team
Pediatric Palliative Care Guide for ParentsResource for how to talk about "Pediatric Hospice" with your care team
Pediatric Hospice Guide for ParentsResource for talking to families about "Pediatric Palliative Care"
For Providers: Pediatric Palliative Care Conversation GuideResource for talking to families about "Pediatric Hospice"
For Providers: Pediatric Hospice Conversation GuidePPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.